In today’s blog Chief investigator Prof. Ranganath reinforces the need for SONIA 2 patients taking nitisinone to keep on top of a controlled protein Diet. Why is a controlled protein diet important for those taking nitisinone? Dietary protein is made up of building blocks. .. ...more
In this week's blog, we talk to Brendan Norman, a PhD student at the University Of Liverpool, about his research into what can be learnt about AKU using mass spectrometry. What is mass spectrometry? Mass spectrometry is a technique for separating the different chemical compounds within.. ...more
In today's blog, we Introduce Leah Taylor, a PhD student who is exploring a way of analysing disease progression in AKU to make it easier to understand and track what AKU is doing to patients bodies. What were you doing before this PhD research project? I moved to Liver.. ...more
In today’s blog, we introduce Juliette Hughes, who is currently researching a PHD at the University of Liverpool under the guidance of AKU researcher Professor Jim Gallagher. Her PHD, entitled “Combating tyrosinaemia in the genetic disease Alkaptonuria” is funded by the AKU Society based in Camb.. ...more
DevelopAKUre is a series of major international clinical trials, run by a consortium of 12 European partners. It aims to study a potential new drug, called nitisinone, and assess its potential effectiveness in treating the rare disease, alkaptonuria (AKU).
DevelopAKUre is co-funded by a grant from the European Commission. This website is run by a UK patient group, the AKU Society. Learn more about AKU on the AKU Society's What is AKU page.
In today’s blog Chief investigator Prof. Ranganath reinforces the need for SONIA 2 pat.. ...more