This video introduces AKU patients and brothers Arnold and Marcel from the Netherlands. They discuss their experiences of being enrolled in our DevelopAKUre clinical trials.
This video introduces AKU patients Charlotte from Denmark and Anita from Sweden. They also share their experience of being enrolled in our DevelopAKUre clinical trial.
We talked to patients enrolled in our DevelopAKUre clinical trial, explaining why the monitoring arm is important and how the clinical trial has benefitted them.
This video introduces Helen, one of the research nurses at the Royal Liverpool University Hospital. Helen talks about her experience of being involved in our DevelopAKUre clinical trial.
In September 2015 Vwe talked to Prof Ranaganath who gave an overview of the clinical trial programme, why each part is
In July 2015 we heald a webinar on the progress of the DevelopAKUre clincal trials The focus was mainly around SONIA 2, but patients were able to ask their questions about all aspects of the trials. You can view the full recording here:
DevelopAKUre is a series of major international clinical trials, run by a consortium of 12 European partners. It aims to study a potential new drug, called nitisinone, and assess its potential effectiveness in treating the rare disease, alkaptonuria (AKU).
DevelopAKUre is co-funded by a grant from the European Commission. This website is run by a UK patient group, the AKU Society. Learn more about AKU on the AKU Society's What is AKU page.
In today’s blog Chief investigator Prof. Ranganath reinforces the need for SONIA 2 pat.. ...more