Clinical Sites



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Name

Royal Liverpool University Hospital

Location

Liverpool, UK

Contact

Prof Laksminarayan Ranganath

Website

http://www.rlbuht.nhs.uk/Pages/RoyalHome.aspx

Description

The Royal Liverpool University Hospital is an NHS hospital in the UK, and is also the site of the National AKU Centre, an expert assessment and treatment centre for AKU patients.

The hospital is the coordinator of DevelopAKUre, meaning it is responsible for budgets and reporting to the European Commission. It is also the UK clinical trial site, enrolling 15 patients into SONIA 1, 41 patients into SONIA 2 and 32 patients into SOFIA.



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Name

National Institute of Rheumatic Disease (NIRD)

Location

Piestany, Slovakia

Contact

Prof Jozef Rovensky

Website

http://nurch.sk/

Description

The National Institute of Rheumatic Disease was founded in 1953 and has over 60 years’ experience of research into AKU, ochronosis and inflammatory rheumatic disease. It now functions as a teaching centre for rheumatology research in Slovakia.

The institute is the Slovak clinical trial site for DevelopAKUre, enrolling 15 patients into SONIA 1 and 63 patients into SONIA 2.



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Name

Hopital Necker and Institute Necker

Location

Paris, France

Contact

Prof Pascale de Lonlay

Website

http://www.necker.fr/

Description

The Reference Centre of Inherited Metabolic Diseases and the Institute Necker are departments of the Hopital Necker. The hospital is a reference centre for rheumatology disease in paediatric and adult patients. It has experience of treating AKU patients, and in using nitisinone for the treatment of tyrosinaemia patients.

The hospital is the French clinical trial site for DevelopAKUre, enrolling 33 patients into SONIA 2.


 

 
 

Welcome To DevelopAKUre


DevelopAKUre is a series of major international clinical trials, run by a consortium of 12 European partners. It aims to study a potential new drug, called nitisinone, and assess its potential effectiveness in treating the rare disease, alkaptonuria (AKU).

DevelopAKUre is co-funded by a grant from the European Commission. This website is run by a UK patient group, the AKU Society. Learn more about AKU on the AKU Society's What is AKU page.

 

DevelopAKUre Blog

SONIA 2 – Controlling Protein to Support Nitisinone Treatment
11-Jul-2017

In today’s blog Chief investigator Prof. Ranganath reinforces the need for SONIA 2 pat.. ...more

Introducing PhD Student Brendan Norman
16-Feb-2017

In this week's blog, we talk to Brendan Norman, a PhD student at the University Of Liverpool, ab.. ...more