AKU Blog

  • RCN Congress May 2019

    Date: 14-Jun-2019

    The Royal College of Nursing (https://www.rcn.org.uk/) (RCN) Congress is the biggest event of the nursing calendar and attracts more than 4,000 nurses from across the UK and beyond. It provides a platform for nurses to share and develop nursing practice and influence health policy debates. T.. ...more

  • AKU Society Brazil - Flavia at the NIH

    Date: 07-Jun-2019

    Today’s blog is written by the head of the Brazilian AKU Society (https://www.akubrasil.com/), Flavia Mayrink. Originally written in Portuguese, the blog details her recent visit to the National Institutes of Health (NIH) (https://www.nih.gov/)which is based in Bethesda, Maryland, USA... ...more

  • RE(ACT) Congress America 2019 - Toronto

    Date: 24-May-2019

    This week's blog is written by AKU Society CEO Nick Sireau. Rare disease research has grown significantly over the past decade, yet conferences devoted entirely to this remain scarce. That’s why the REACT Congress (https://www.react-congress.org/), set up by Dr Olivier Menzel and his B.. ...more

  • Donating to us via Facebook

    Date: 03-May-2019

    Exciting news, the AKU Society now accepts Facebook Donations. With 1.8 billion people on Facebook every month, Facebook can be a brilliant place for you to engage with your friends and family and ask them to donate to your AKU fundraiser. In today’s blog, we will be giving you som.. ...more




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AKU Blog

RCN Congress May 2019
14-Jun-2019

The Royal College of Nursing (https://www.rcn.org.uk/) (RCN) Congress is the biggest event o.. ...more

AKU Society Brazil - Flavia at the NIH
07-Jun-2019

Today’s blog is written by the head of the Brazilian AKU Society (https://www.akubrasi.. ...more

RE(ACT) Congress America 2019 - Toronto
24-May-2019

This week's blog is written by AKU Society CEO Nick Sireau. Rare disease research has grown .. ...more

Donating to us via Facebook
03-May-2019

Exciting news, the AKU Society now accepts Facebook Donations. With 1.8 billion people o.. ...more

Stand Up to AKU Comedy Night 2019 - Raffle Prizes!
25-Apr-2019

Our annual ‘Stand Up to AKU’ night is rapidly approaching and here at the AKU So.. ...more