Our Funders


We would like a say a huge thank you to the trusts and foundations below for supporting our work.

 - Online project. Overcoming the lack of information for AKU Patients. 



        - DevelopAKUre project. Our clinical trial into the drug nitisinone.    

     


- Patient support before, during and after NAC clinics

   - Breaking Down Barriers Project. Overcoming barriers to information. 


 - Research funding at the University of Liverpool and Lancaster University.


          - Funding towards our first Children’s workshop.




The Strangward Trust
- Continuation of our BLF project, “Reaching Communities”.

 


The Hedley Foundation- Funding towards our first Children’s workshop.



   - Reaching Communities.



The Albert Hunt Trust- Funding towards an adult workshop.



  - Adult workshop.



The Constance Travis Charitable Trust- General funds.



  - International AKU Patient Workshop and AKU Childrens book


  - Funding for a 2017 AKU Dietary Advice 


  - Supporting AKU patients in Bedfordshire


 - Provided us with a free bannerstand. 









AKU Twitter

AKU Blog

Meet the patient - Simon Laxon
18-Apr-2019

Today’s blog is written by AKU patient Simon Laxon. In it, he writes about .. ...more

Stand Up To AKU 2019!
12-Apr-2019

We are excited to announce that our Stand up to AKU Comedy Night is back! This year we are h.. ...more

Luton Health Awareness Event
05-Apr-2019

On Tuesday the 26th of March, our Patient Support Manager, Lesley, and Fundraising Officer, .. ...more

EURORDIS Winter School 2019
29-Mar-2019

In today's blog, CEO and Chair Nick Sireau tells us about his recent trip to Paris for t.. ...more

Rare Disease Day 2019
14-Mar-2019

Rare Disease Day is an international day designed to raise awareness to the public and those.. ...more