Resources


This page provides resources for AKU patients, carers and their families. The information on this page includes leaflets about AKU and our services, impact reports, newsletters and presentations from our patient workshops.

An Introduction to Alkaptonuria (AKU) - Children's Booklet An Introduction to Alkaptonuria (AKU) - Children's Booklet (4459 KB)

AKU Society Leaflets

We regularly produce leaflets with the latest information about services available for AKU patients and carers. Please check back regularly for new leaflets and information.

No media download found.

The AKU Society - printable The AKU Society - printable (1703 KB)

What is Alkaptonuria - Printable What is Alkaptonuria - Printable (2208 KB)

How AKU is Inherited printable How AKU is Inherited printable (922 KB)



Polish versions 

anintroduction to aku -pl anintroduction to aku -pl (3125 KB)

How AKU is Inherited-pl How AKU is Inherited-pl (2226 KB)

The AKU Society-pl The AKU Society-pl (4492 KB)


What is Alkaptonuria v2-pl What is Alkaptonuria v2-pl (4865 KB)



Punjabi Versions 

AKU Guide 2017 A5 Punjabi AKU Guide 2017 A5 Punjabi (3171 KB)


How AKU is Inherited Punjabi How AKU is Inherited Punjabi (2245 KB)


The AKU Society Punjabi The AKU Society Punjabi (4517 KB)


What is Alkaptonuria v2 Punjabi What is Alkaptonuria v2 Punjabi (4884 KB)



Urdu Versions 

AKU Guide 2017 A5 Urdu AKU Guide 2017 A5 Urdu (4268 KB)


How AKU is Inherited Urdu How AKU is Inherited Urdu (2274 KB)


The AKU Society Urdu The AKU Society Urdu (4531 KB)


What is Alkaptonuria Urdu What is Alkaptonuria Urdu (4914 KB)





Welsh Versions 

AKU Guide 2017 A5-cy AKU Guide 2017 A5-cy (3143 KB)


How AKU is Inherited-cy How AKU is Inherited-cy (2226 KB)


The AKU Society-cy The AKU Society-cy (4489 KB)


What is Alkaptonuria v2-cy What is Alkaptonuria v2-cy (4862 KB)



Gujarati Versions 

AKU Guide 2017 A5 Gujarati AKU Guide 2017 A5 Gujarati (3221 KB)


How AKU is Inherited Gujarati How AKU is Inherited Gujarati (2290 KB)


The AKU Society Gujarati The AKU Society Gujarati (4497 KB)


What is Alkaptonuria v2 Gujarati What is Alkaptonuria v2 Gujarati (4941 KB)



Hindi Versions 

AKU Guide 2017 A5 - Hindi AKU Guide 2017 A5 - Hindi (3254 KB)

How AKU is Inherited - Hindi How AKU is Inherited - Hindi (2295 KB)


The AKU Society -Hindi The AKU Society -Hindi (4554 KB)


What is Alkaptonuria - Hindi What is Alkaptonuria - Hindi (4952 KB)



Impact report 2018

Our 2018 Impact Report showcases our work and highlights our key achievements:

SOFIA Paper SOFIA Paper (1753 KB)



Impact Report 2018 Impact Report 2018 (1550 KB)



Fundraising Pack 2019

Our updated Fundraising pack contains useful information for people who want to raise money to support the work we do.  If you are interested in raising money for the AKU Society and want to get your hands on a copy, please email juliet@akusociety.org.

Fundraising Pack 2019 Fundraising Pack 2019 (13644 KB)



Newsletters

We post regular newsletters to our UK supports, keeping them updated on our news and work. You can access our most recent newsletters below:

Spring Newsletter 2017 Spring Newsletter 2017 (1901 KB)

SOFIA 

Here you can read the results from our observational study SOFIA ( “Subclinical Ochronotic Features in Alkaptonuria”. ) Published in the journal BMJ Innovations. 

SOFIA Paper SOFIA Paper (1753 KB)


AKU Review Paper 

This article was published in the Annals of Clinical Biochemistry that serves as a review article of the research and findings that has taken place into AKU, its causes, treatments and genetics. 

AKU review paper AKU review paper (663 KB)




AKU Twitter

AKU Blog

AKU Patient Workshop 2019 - Garrod Day Special
05-Dec-2019

In today’s blog, we look at our brilliant patient workshop held in Liverpool on the 25th Novem.. ...more

Eurordis Digital School & RCGP Annual Primary Care Conference 2019
08-Nov-2019

Eurordis Digital School At the start of the month Ciarán our Communications Manager .. ...more

One Month to Go until Garrod Day!
25-Oct-2019

We are only one month away from Garrod Day! On the 25th November, we celebrate the birthday of Si.. ...more

Garrod Day Coffee Morning: Tips for a Successful Coffee Morning
27-Sep-2019

We are busy preparing for our annual Garrod Day Coffee Morning on the 25th of November... ...more

AKU Society upcoming events in Winter 2019
12-Sep-2019

It's another busy few months here at the AKU Society. We are travelling all over Europe to r.. ...more