On Saturday 6th June'the Jordanian AKU society organised the second AKU patient day. Many of the patients who attended are taking part in the DevelopAKUre clinical trial at the Slovakian site in Piestany. In today's blog Dr. Mohammed, Chairman of the Jordanian AKU Society, 'gives us a report on .. ...more
Today is International Clinical Trials Day, and to mark the occasion we want to celebrate the achievements we have made in our clinical trial so far. With SONIA 2 recruitment finished, and second visits coming to an end this week, this month’s blog provides an update on how far we have com.. ...more
The DevelopAKUre programme is a major international clinical trial, run by the AKU Society and supported by a huge European network, including 13 hospitals, pharmaceutical companies and consultancies, universities, biotech companies and national AKU patient groups. The countries involve.. ...more
The start of our second trial, SONIA 2 (#), is just around the corner! With this is mind, this week's post talks about important things to think about when you're getting involved in a clinical trial. Eligibility Criteria The first question when considering taking part in a trial is whe.. ...more
DevelopAKUre is a series of major international clinical trials, run by a consortium of 12 European partners. It aims to study a potential new drug, called nitisinone, and assess its potential effectiveness in treating the rare disease, alkaptonuria (AKU).
DevelopAKUre is co-funded by a grant from the European Commission. This website is run by a UK patient group, the AKU Society. Learn more about AKU on the AKU Society's What is AKU page.
In today’s blog Chief investigator Prof. Ranganath reinforces the need for SONIA 2 pat.. ...more