DevelopAKUre Blog

  • Why do we Need $98,000 for the Clinical Trials?

    Date: 29-Aug-2013

    Last year, we received some funding for our ground breaking DevelopAKUre clinical trials. Our Indiegogo Campaign Banner[/caption] AKU patients have been waiting years for these trials to take place. Nitisinone is the world’s first potential cure for AKU, and if the trials are s.. ...more

  • Growing up – how a drug moves from the lab to a pharmacy shelf

    Date: 29-Aug-2013

    The drug development process can often seem complicated with overwhelming amounts of jargon. A useful way to think of the various phases of drug development is to compare them with a child growing up. Embryonic – The Preclinical Phase In the context of drug development, clinica.. ...more

  • Keeping You Safe

    Date: 08-Aug-2013

    The DevelopAKUre clinical trials (#) are a promising development in AKU research and many patients have been waiting for these trials for years. However, some of you may have concerns about taking part. It is important to understand there are many ways in which you are kept safe during clinical .. ...more

  • Taking Part in Sonia 1: A Patient’s Perspective

    Date: 25-Jul-2013

    Dirk Verschaeve and Geert Verschaeve are two AKU patients taking part in Sonia 1. They are from Belgium, and they’re helping set up a Belgian AKU Society with their doctor and specialist, Professor Meersseman. We spoke to them about their experience of Sonia 1 so far. Why did you choo.. ...more



Welcome To DevelopAKUre

DevelopAKUre is a series of major international clinical trials, run by a consortium of 12 European partners. It aims to study a potential new drug, called nitisinone, and assess its potential effectiveness in treating the rare disease, alkaptonuria (AKU).

DevelopAKUre is co-funded by a grant from the European Commission. This website is run by a UK patient group, the AKU Society. Learn more about AKU on the AKU Society's What is AKU page.


DevelopAKUre Blog

SONIA 2 – Controlling Protein to Support Nitisinone Treatment

In today’s blog Chief investigator Prof. Ranganath reinforces the need for SONIA 2 pat.. ...more

Introducing PhD Student Brendan Norman

In this week's blog, we talk to Brendan Norman, a PhD student at the University Of Liverpool, ab.. ...more