DevelopAKUre Blog

  • Smart talking about clinical trials

    Date: 05-Dec-2013

    One of the unique things about our clinical trials is we encourage patients to talk about them. We think it’s important all patients are able discuss the trials openly, both in person and on our online communities RareConnect ( and .. ...more

  • DevelopAKUre: One Year On

    Date: 24-Oct-2013

    Last week, the AKU Society headed up to Liverpool for four major events taking place over three days. On Wednesday, we attended a scientific meeting on the lessons we can learn from rare diseases affecting cartilage. On Thursday, we held our second patient workshop alongside the seventh AKU scie.. ...more

  • A Multilingual Message for DevelopAKUre

    Date: 10-Oct-2013

    One of the amazing things about DevelopAKUre is how it unites people from all over the world. The mission to cure AKU crosses boundaries between cultures, countries and languages in such an incredible way. The DevelopAKUre consortium partners are based in 7 European countries: the United Kingdom.. ...more

  • Randomisation: What is it and why do we do it?

    Date: 26-Sep-2013

    As we discussed in a previous blog post (#), some of the most frequent questions we get about the clinical trials are why there is a non-treatment group. Following those questions, we are often asked why patients cannot choose which group they are in. Unsurprisingly the majority of patients want.. ...more



Welcome To DevelopAKUre

DevelopAKUre is a series of major international clinical trials, run by a consortium of 12 European partners. It aims to study a potential new drug, called nitisinone, and assess its potential effectiveness in treating the rare disease, alkaptonuria (AKU).

DevelopAKUre is co-funded by a grant from the European Commission. This website is run by a UK patient group, the AKU Society. Learn more about AKU on the AKU Society's What is AKU page.


DevelopAKUre Blog

SONIA 2 – Controlling Protein to Support Nitisinone Treatment

In today’s blog Chief investigator Prof. Ranganath reinforces the need for SONIA 2 pat.. ...more

Introducing PhD Student Brendan Norman

In this week's blog, we talk to Brendan Norman, a PhD student at the University Of Liverpool, ab.. ...more