This week our Online Communities Officer, Jenni, will be leaving us to go travelling. Jenni began working for the AKU Society in September 2012. In the last 17 months, Jenni has transformed the online world of AKU. If you follow us on Twitter (http://www.twitter.com/AKUSociety) or Faceb.. ...more
Liz is an AKU patient from Dublin, Ireland. She has four children and is interested in community work. She recently took part in our first clinical trial, SONIA 1, at the Royal Liverpool University Hospital. Why did you choose to take part in SONIA 1? There were two main reasons. My first.. ...more
Last week, Oliver, attended the first meeting of a think tank for a new project called Asterix. In today’s blog, Oliver explains more about the project and what our involvement means for the AKU Society. Asterix Asterix (http://www.asterix-fp7.eu) is a European Commission .. ...more
It's nearing the end of 2013. With this in mind, it's a great opportunity to review the last 12 months and look over all DevelopAKUre has achieved. In just 12 short months, our first clinical trial has finished and we're hoping to have a dose decision for nitisinone by Christmas. Have a look over ev.. ...more
DevelopAKUre is a series of major international clinical trials, run by a consortium of 12 European partners. It aims to study a potential new drug, called nitisinone, and assess its potential effectiveness in treating the rare disease, alkaptonuria (AKU).
DevelopAKUre is co-funded by a grant from the European Commission. This website is run by a UK patient group, the AKU Society. Learn more about AKU on the AKU Society's What is AKU page.
In today’s blog Chief investigator Prof. Ranganath reinforces the need for SONIA 2 pat.. ...more