AKU Blog

  • Luton Health Awareness Event

    Date: 05-Apr-2019

    On Tuesday the 26th of March, our Patient Support Manager, Lesley, and Fundraising Officer, Juliet, travelled to Luton for the Flying Start and Breaking Down Barriers Health Awareness and Genetics Event. Flying Start (https://www.flyingstartluton.com/) and Public Health Luton worked in partn.. ...more

  • EURORDIS Winter School 2019

    Date: 29-Mar-2019

    In today's blog, CEO and Chair Nick Sireau tells us about his recent trip to Paris for the European Organisation for Rare Diseases Winter School. A major player in the world of rare diseases is EURORDIS (https://www.eurordis.org), the European Organisation for Rare Diseases. .. ...more

  • Rare Disease Day 2019

    Date: 14-Mar-2019

    Rare Disease Day is an international day designed to raise awareness to the public and those in government about rare conditions and how they affect people across the world. The day falls on the last day of February every year and sees thousands of events happening internationally. The AKU S.. ...more

  • Cambridge Half Marathon 2019: On the Day

    Date: 08-Mar-2019

    Last Sunday our two runners, Ana and Katja, both completed the Cambridge Half Marathon. They raised a remarkable combined total of £651.82. Our fundraising officer, Juliet, was there on the day and told us more about how the day went. Unfortunately, it was a cold and wet day for our .. ...more

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AKU Society upcoming events in Winter 2019

It's another busy few months here at the AKU Society. We are travelling all over Europe to r.. ...more

Get Involved In Garrod Day 2019

It’s that time of year again; our annual Garrod Day Coffee Morning is on the 25th of N.. ...more

In Memory of Ann Kerrigan – AKU Champion

We are very sad to announce that Ann Kerrigan passed away last week due to complications dur.. ...more

Meet Maria - AKU Society Student Placement

Hi! My name is Maria and I am currently a 2nd-year student at Royal Holloway University of L.. ...more

DevelopAKUre - A History

Today's blog is written by Nick Sireau the Chair and CEO of the AKU Society, It was in.. ...more