The Trials

Learn more about the three parts of DevelopAKUre

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DevelopAKUre

Learn more about the DevelopAKUre consortium

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Updates

Learn more about the current updates in the trials

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Welcome To DevelopAKUre


DevelopAKUre is a series of major international clinical trials, run by a consortium of 12 European partners. It aims to study a potential new drug, called nitisinone, and assess its potential effectiveness in treating the rare disease, alkaptonuria (AKU).

DevelopAKUre is co-funded by a grant from the European Commission. This website is run by a UK patient group, the AKU Society. 
Learn more about AKU on the AKU Society's What is AKU page.

DevelopAKUre Blog

SOFIA: The Patient Perspective
11-Aug-2016

Over the past few months, alkaptonuria (AKU) patients have been making their way to Liverpool fr.. ...more

The 8th European Conference on Rare Diseases and Orphan Products (ECRD) In Edinburgh
16-Jun-2016

In this week’s blog, Oliver talks about attending the 8th European Conference on Rare Dise.. ...more